Assessment of Quality of Life for Patient with Thalassemia at Thalassemia Center in Thi-Qar Pronince

Authors

  • Ali Jerin AlJabiri Pediatrics Department, College of medicine, Thi-Qar University
  • Alaa M. Tuama Assist Instructor, Community Health Department ,College of Nursing, University of Thi- Qar
  • Hiba Abdul-atheem Abdul-ameer Cancer Research Unit, College of medicine, Thi-Qar University

Abstract

Objective: To Assessment Quality of Life for Patient with Thalassemia at Thalassemia Center in Thi-Qar Governorate, and to identify the association between nurses' socio-demographic characteristics of age, gender, marital status, occupation and blood group  and their effect to quality of life for patient with thalassemia. Methodology: A purposive "non-probability" sample of (100) patient who were selected from thalassemia Center in Thi-qar governorate for the period from October 4th 2014 to April 1st of 2015. Results:The  study results indicated that more than half of the sample participants are resident urban areas (58%), more than half of the sample participants were men (58%), more than half of the sample of participants are from the age group (5-10) years (54% ), that the vast majority of the participants were single (91%), one-third of the sample almost with low literacy (38%), most of the sample jobless (78%) and there is a significant relationship between the quality of life and some of the variables (such as age, level education and occupation).                                                         Recommendations: Initiate program to examine men and women before marriage to prevent thalassemia disease, the establishment of educational programs about the importance of adhering to a time treatment to reduce complications of thalassemia.

References

KuoHt,Penq CT, Tsai MY (Pilot study on parental stress and behavioral adjustment to the thalassemia major disease process in children undergoing iron-chelation in western Taiwan.Hemoglobin. 2006;30(2):301-9.

Wonke-B( clinical management of bete- Thalassemia Major) Semin Hematol-2001, 38(4):350-q

Ratip S, Modell B. Psychological and sociological aspects of the thalassemia's. Seminars in Hematology1996; 33: 53-65.

Tsiantis J, Xypolita-Tsantili D, Papadakou-Lagoyianni S.:Family reactions and their management in a parents group with b-thalassemia. Archiv Dis Child.1982; 57: 860-863

betz L, Baladi JF, Jones P, Rofail D: The impact of iron overload and its treatment on quality of life: results from a literature review. Health Qual Life Outcomes2006,4:73.

Thai Thalassemia Foundation: Diagnosis of thalassemia carrier (in Thai language). http://www.thalassemia.or.th/thaiversion/diag-carrier-th.htm.

Polit, D.; and Hungler, B.: Nursing research, principles and methods, 6thed, Baltimore: Lippincott, 1999.

Amare, H.; Gelaw, A.; Anagaw, B.; Gelaw, B.: Smear positive pulmonary tuberculosis among diabetic patients at the Dessie referral hospital, Northeast Ethiopia, Infectious Disease of Poverty, 2013: 2(6), p.: 3. Available online http:// www. Idp journal. com/ content/2/1/6

Othman, G.; Ibrahim, M.; Raja’a Y.: Health related quality of life of pulmonary and extra-pulmonary tuberculosis patients in Yemen, African Journal of Pharmacy and Pharmacology, 2011,5(4) : 549.

Masood, S.; Muhammad, W.; Muhammad, A.: Factors influencing quality of life in patients with active tuberculosis in Pakistan, 2012, p.: 4. available online http://mpra.ub.uni-muenchen.de/40043/

Dhuria, M.; Sharma, N.; Ingle, GK.: Impact of Tuberculosis on the Quality of Life, Indian J Community Med, 2008,33 (1) : 58-59.

Hossain, S.; Abdul Quaiyum, M.; Zaman, K.; Banu, S.; Husain, M.; Islam, M.; Cooreman, E.; Borgdorff, M.; Lo¨nnroth, K.; Salim, A.; Leth, F.: Socio Economic Position in TB Prevalence and Access to Services: Results from a Population Prevalence Survey and a Facility-Based Survey in Bangladesh, PLOS ONE, Vol (7), No (9), 2012, p.: 3. available online www.plosone.org

Leak, A.; Smith, S.; Crandell, J.; Jenerette,C.; Bailey, D.; Zimmerman, S.; Mayer, D.:Demographic and Disease Characteristics associated with non-Hodgkin Lymphoma Survivors’ Quality of Life, Oncol Nurs Forum. 2013:40 (2) 4-5.

Adeyeye, O.; Onadeko, B.; Ogunleye, O; Bamisile, R.:The Effects of Sociodemo graphic and Economic Factors on the Quality of Life of Patients on Treatment for Pulmonary Tuberculosis at the Lagos State University Teaching Hospital, Ikeja, Lagos, Chest Journal, 2010.38 (4): 1.

Al-Jadid MS.; Al-Asmari AK.; Al-Moutaery KR.: Quality of life in males with spinal cord injury in Saudi Arabia, Saudi Medical Journal, 2004,25 (12):1979-1985.

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Published

2021-03-02

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